About

Breasts naturally vary in size, shape and symmetry, especially during puberty. Developmental changes continue throughout the teen years. In some instances, medically recognized developmental conditions exist that can affect how breast tissue develops. These include developmental asymmetry (common), tubular/tuberous breast condition (not uncommon), and polythelia (not uncommon) or Poland Syndrome (rare).
My Story

In my early teens, I began to notice my breasts were developing differently, and that they didn’t look the same as other girls’ looked. When I researched online I didn’t find similarities to mine there either, or very much information at all about what could be the reason. Images online and in social media were unhelpful. I know now that social media usually shows perfection, and often makes girls feel inadequate by comparison in all kinds of ways.
I talked to my mom and we talked to my doctor. Although that was helpful, my doctor encouraged me to wait and see over time through my continued development if this would change. That’s what I did and I hoped eventually I would not feel as if they looked so different.
As my mom and I continued to research, it became clear that good information online was hard to find. I finally learned I had what’s called tubular breast condition (or tuberous breast condition), which turns out to be far more common than anyone generally thinks. One large study shows it may impact up to 27.6% of girls and women to some degree. It is thought that most of the milder cases are never diagnosed and that this likely accounts for the lack of awareness, under-diagnoses, and lack of information in general about this condition.
There are other breast conditions for which this is also the case, such as polythelia (additional nipples, which is not uncommon), and breast asymmetry, which is very common. It has been very surprising to me that it’s still so difficult to find reliable, teen-friendly information about these, and that there is so little awareness of them.
Girls with these conditions often feel concerned, confused and embarrassed about how they look, and may feel alone because they think no one else has these. Often, when they try to find information online, they find a lot of advertisements for cosmetic surgery and not a lot of objective, teen-friendly medical information. They also may read or hear that they should not be concerned about it right now, and to wait and it will improve. Although breast asymmetry may improve through continued development during the teen years, tubular breast condition and polythelia will not.
Through this website, I hope to help other teen girls be able to recognize these conditions and to encourage them to seek medical advice, including second opinions, if needed. By doing this, I hope to help prevent girls from feeling as I did, which was worried, embarrassed, and very concerned that something was wrong with me. These conditions can have a very negative impact on self confidence for a developing teen girl, and let’s face it, being a teen girl these days is tough enough!
Please feel free to reach out to me! ~evin :)
*Disclaimer: This website is for educational purposes only and is not intended to provide medical advice, diagnosis, or recommendations for anyone's individual healthcare needs.
shiningalightjourney@mail.com